||How we work
Among all the main aspects population-based cancer registries have to keep in mind, it is worth pointing out the quality of information and the use of internationally approved working methods that allow data comparison between different cancer registries.
We have recorded all cases of invasive cancer diagnosed for the first time after January 1 1985 among residents in Granada province, which has a population of nearly 900,000 inhabitants. In the same way, we have included urinary tract tumors of uncertain nature and CNS intracranial or intraspinal tumors (ICD-O-3 codes C70-C72, C75.1, C75.2, C75.3) of benign or uncertain behaviour - in situ tumors havealso been recorded, although not used to calculate incidence rates-. The registration unit is the tumor, not the patient- that is why when dealing with multiple primary tumors it will be possible to identify several recorded cases referring to the same patient.
Sources of information, data collection and processing
All the information handled by the GCR comes from public and private health facilities located in the province of Granada.
Cases are primarily detected through the information regularly received by the Registry, mostly from public and private Hospital Discharge and Anatomic Pathology Services. It is also very useful the information provided by other hospital departments in which cancer patients are diagnosed and / or treated -Hematology, Medical Oncology and Radiotherapy, Palliative Care, Pain Management Unit ,...).
In addition, GCR’s staff pays regular visits to different health centers, where the information received is verified and completed by checking clinical documentation.
At the GCR, data collection and processing is performed according to protocols designed to ensure the quality of information that is obtained. For each case three large blocks of information are collected:
- Personal identification data and sociodemographic characteristics
- Main data on tumor (date of incidence, anatomic location, histology, basis of diagnosis…)
- Sources of information
Some tumors require further details about other aspects of healthcare (diagnostic methods, stage, treatment, recurrences...), information which is collected according to specific protocols.
The GCR applies internationally recognised standards and working procedures, which ensures the quality of information and enables comparing results between different population-based cancer registries databases.
PBCRs are required to be aware of the fact that the information they work with is generated in clinical practice and therefore subject to the same confidentiality rules applied to the sources it comes from.
The GCR fulfills this obligation producing a confidentiality agreement which must be signed by all the professionals that, by reason of their duties, have access to the registry data, even after termination of their professional activity.
As required by Spanish law, the GCR database is registered with the Spanish Data Protection Authority (Registration code 1973500003).
Dissemination of information
The information on cancer generated by the GCR has been published in consecutive editions of: a) Cancer Incidence in Five Continents vol. VI (1992), VII (1997), vol VIII (2002) and vol. IX (2007), b) International Incidence of Childhood Cancer (1999) and c) Survival of Cancer Patients in Europe: the EUROCARE Study (1995, 1999), published by the IARC. In addition, this information has been incorporated into the electronic journals: European Cancer Incidence and Mortality Database (EUROCIM, 2001) and Automated Childhood Cancer Information System (ACCIS).
Currently, the GCR stores data on 75,000 incident cases of cancer in the province of Granada. Using this information as a basis, data analysis are regularly performed in response to inquiries made to the GCR itself, as well as aimed to prepare articles, papers and / or communications in scientific meetings and national and international congresses, dissertations, book chapters, or to be used as teaching material in seminars and courses. The media have also passed on reports/reported/mentioned the registry data.
On the other hand, GCR's involvement in over 40 research projects, most of which are international and multicentric, has helped disseminating its results by publishing in over 300 national and international science journals with a real impact factor.